Monday, August 19, 2013

Monday: Nothing predictable in this alternate universe

Today was to be the big day with the ortho consult and the family meeting:  Except the ortho consult really isn't until tomorrow (the doctor made a mistake) and so the family meeting has been scheduled for  Wednesday, well no, again rescheduled till Friday.  I do hope this ortho doctor is on top of things.  Thinking of getting Redjeb some kind of consult for an NYU specialist at some point, but not sure he is up to a cab ride and waiting in a doctor's office.

I kept encouraging Redjeb to eat today, despite the fact that this pureed food is nothing any of us would want.  We discovered that one of the problems is that by the time the food reached him and he felt like eating, the food was luke warm.  So now we nuke it or have one of the aids do so.  Makes a difference.

Redjeb is frustrating the physical therapists as he does things his way.  That shows he is getting better.  That is the Redjeb I know (and sometimes get frustrated with myself, but am now happy to see that characteristic reasserting itself).

As usual spent time in the garden.

  He still sleeps a lot during the day and what annoys him is that he then is full awake all night.  They may let him take a sleeping pill if that continues, so he shall see.  Despite it all, Redjeb mentioned to me that he was feeling a little better this eve.

No comments:

Post a Comment